Tuesday, May 16, 2017

May 16th

All is going well.  I am having small movements on the left side.  It is very encouraging.

My neurosurgeon called me last Friday.  He said the tumor is now in CA at University of CA, San Francisco.  They are testing it there and trying to figure out what it is.  They are thinking it is astrocytoma but not sure yet.  They are doing some type of DNA testing on it.  I have another appointment with the neurosurgeon next Monday and he is hoping to find out for sure, what it is.
He did drop a little bit of a bomb on me.  He said he might refer me to an oncologist for radiation treatment.  He had said before surgery, that nerves do not like radiation or chemotherapy so I was a little bit on the shocked side when he said that might be an option.  From what I have read online, typically, they do radiation if, the don't get it all (not the case with me) or if it grades out at a 3 or 4.  So, I am hoping mine gets a 1 or 2.

I have found a person on Facebook that had a very similar tumor except his was huge!  As in a foot long!  Mine was 2 CM long.  We have chatted some.  He had radiation because they could not get all of his out with surgery alone.  He was brutally honest and said radiation is pretty brutal.  It is going to take a hard sell to talk me into doing that.  I am crossing my fingers that wont be needed and I wont need to make that decision.

Everything else is going good.  I even drove into work today and found a handicap spot at our building!  I hope to work about 3/4 of a day today. 

Thanks for all of the support.

No comments:

Post a Comment